Journaling about my kids (plural- wow!) for me; updates on our life for our wide circle of loved ones is for, well, our loved ones; sharing about life with a spunky toddler and the emotional highs and lows of having a wonderful baby with Down Syndrome is for anyone who might be on a similar journey.
Also see my blog: www.lupesmom.blogspot.com

Saturday, October 5, 2013

Dear Your Royal Highness

Your Royal Highnesses,
I want to thank you for taking the time to read my daughter’s letter.  As many five year olds are, she is pretty obsessed with princesses, and was disappointed when we were in England this summer that she couldn’t meet Princess Kate.  How do you explain the real world to a five year old without crushing their imaginations and dreams?
Luckily I was able to tell her that there was a rumored “due date” of July 13, so she was probably not able to meet the princess because she was getting ready to have her baby.  On that day we celebrated a family reunion in London and met distant family from Scotland for the first time.  My husband is from Mexico and it was his first time in Europe. 
Imagine our excitement to find out that the royal baby would have Alexander as one of his names, the same as Lupe’s little brother!
I also wanted to say that as a mom of a little boy with Down syndrome, I was so happy to read that you had chosen a work of art by an artist, who happens to have Down syndrome, for your son’s nursery.  You may have chosen the lovely painting simply because you felt a special connection with it, but as you know, these small choices can be so uplifting and affirming for a group of people.  Thank you.
Before Liam Alexander was born I knew nothing about Down syndrome.  The beginning was filled with a lot of fear - of the unknown, when it should have been filed with hope.  He is now two and I have learned a lot and am now filled with high expectations, and HOPE.  Hope that he has so many more possibilities than I could have imagined in those first months. 
Lupe knows why her brother’s therapists come to work with him.  But she really doesn't know anything is different about her brother.  She doesn't know what challenges he may face as he grows up.  She adores him.  Someday though, she will understand more and come to appreciate, as I do, your choice of art.  You strike me as good people.  Thank you for all the good things you are doing with the privilege of your position.  And congratulations on the birth of your beautiful son!
Most sincerely,

Sara McGrath

Here is a link to an article about the artist, Tazia Fawley:


No comments:

Post a Comment