Journaling about my kids (plural- wow!) for me; updates on our life for our wide circle of loved ones is for, well, our loved ones; sharing about life with a spunky toddler and the emotional highs and lows of having a wonderful baby with Down Syndrome is for anyone who might be on a similar journey.
Also see my blog: www.lupesmom.blogspot.com

Thursday, September 1, 2011

For the past week I have been making more of an effort to put Liam on the floor for "tummy time"  and he is doing much better with his neck control.  He can turn his head from side to side and hold it up for  a bit.  He is oh so clever.
Next week we have an occupational therapist visiting us.  I think he is doing just great.  Today our pediatrician said he is at 90% for height and weight.  Supposedly there is an adjusted chart for babies with Downs. On the "normal" chart he is at 50%, normal, average, not too big or small. Overall, he is OFF THE CHARTS!
At the NICU support group I go to onThursdays, many of the (much older now) babies were premature and they have their age and their adjusted age.  And I wonder when do they stop saying, "She is 5 months, 7 months adjusted".  Is Liam in the 90% for height, 50% adjusted, or is it vice versa?
And did I mention that for the past week I have barely used the breast pump, pure pecho, breastfeeding?  He doesn't even seem to want the bottle anymore.  He gained 7.5 oz this week (6 oz the week before) and drank 2 oz from me in half an hour there at the BF office support group- yahoo!
I thought I'd be so much more experienced and confident this time around but it is all new again.  All the uncertianty comes back even if you've done it before.  But I am gaining more confidence every week.

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