Also see my blog: www.lupesmom.blogspot.com
Monday, April 6, 2015
Thursday, April 2, 2015
Grocery shopping was fun today!
Monday, March 30, 2015
Poor little guy
Tuesday, March 10, 2015
Pre IEP evaluation hormonal rant
Monday, March 2, 2015
Little things that are BIG
Thursday, February 26, 2015
What do I want?
Friday, February 6, 2015
Girl Scouts
Thursday, January 29, 2015
Progressing and present
The best thing I heard from Bob was that Liam was "present" and this may seem a small thing, but it means everything to me. Here's why: when Liam was born I knew nothing about Down syndrome or special needs. And I have to admit, my biggest fear was that he would have a vacant look in his eyes, that he wouldn't be present. It's hard to admit fears, but in doing so sometimes you find you're not alone. Someone else may be inspired by your honesty and voice and share their own hopes and fears. This conversation started because i was recounting our breakfast experience that morning in a restaurant in Santa Barbara on our way to the evaluation. Pedro ordered coffee and decided to put honey in it. After one more refill, and added honey, Pedro got a third refill. As soon as the waitress had poured the coffee Liam reaches over and hands Pedro the honey bear, saying "Honey!" We were all impressed with his memory and that's when we were told that Liam was very "present" by the evaluator who has guided us over the last three years.
This guidance is reassuring to say the least. I am not concerned that the process to start speech therapy locally is taking months. I am not worried that we are "losing time" in the wait. Liam is most definitely not falling behind. I am not worried that our guides and trainers from NACD will ever underestimate Liam's potential. Au contraire. They will make sure he is always progressing and we the family are in complete control. No power struggles. No personality conflicts. No time wasted trying to set up meetings with psychologists, special ed directors, general ed teachers, speech therapists, etc. No wishing we had more hours or a different therapist. Just a quarterly day trip and as much contact as I want through phone calls, videos emailed, Skype. I decide. I realize it's not for everyone, but it is working for us.
And Liam's language is exploding! He puts two words together all the time, sometimes more. He copies what we say. He names objects around him. Just now he saw a capital "A" in a book and pointed to it saying "A, apple", referencing an ABC phonics song he likes to listen to. Earlier he told me outside, "Bubbles up high!" His short term memory is improving. I've been trying to keep track of all the new things he's doing and just can't anymore! It's so much!
Our goals going forward are going to be: potty training (we got some good ideas and think he is ready for the next step), still working on behavior/eloping, no choices at meal time (as Lupe's teachers say, "you get what you get and you don't throw a fit"), giving Liam more chores (like cleaning under table, matching socks, putting silverware away), language and processing.
New York New York
Lupe has gone away for a whole weekend with the grandparents before, and Liam has gone for a sleep over once. It went well. Well, he fell off the bed, but that is an easy fix. I would normally be most amazed at the fact that we are going to be away from our kids for five days, for the first time ever. But, all I can think about is New York City! For anyone who might not know, I lived there for 6 years in my twenties. Six amazing years. 1997-2003. And I haven't been back since, it's been 12 years. What? I haven't been back to NYC in over a decade?! It's amazing when you are old enough to start thinking in decades. I will soon have been alive for four of them. And Pedro has never been.
I want art and culture and diversity, multiple languages heard on the street, music and dive bars. Pedro wants Times Square and tourist attractions.
So, here's what is keeping me up at night, my head swimming with memories, fleeting images of street corners, random hours on subway trains, cheap slices of pizza and happy hours at Brooklyn bars.

Pizza slices from Sal in the LES who's been serving New York pizza for eons.
Walking from Little Italy, where there are still old Italian guys in bars that look right out of a movie, to Chinatown wondering how to order some good authentic Chinese food.
Storefront signs with Chinese lettering and Hebrew.
Sixth street in the East Village, an entire block of Indian restaurants with excessive amounts of multicolor Christmas lights.
An Irish pub with straw on the floor.
The 9/11 memorial.
Pretzels in Times Square and swing dancing.
Seeing HighLine park for the first time.
Deli coffee where they prepare it for you and a bagel with scrambled egg. Is it still $2.99 for that combo?
A new ferry line on the East River, stopping in Greenpoint, Williamsburg, DUMBO, the Lower East Side.
Maybe a fancy drink at the Ritz-Carlton on Central Park South.
Taking Pedro to the Met. The lions in front of the main Public Library.
People from every corner of the globe.
My Uncle Patrick and Aunt Mariah.
My old stomping ground of Orchard Street, just off Houston, around the corner from Katz's Deli.
Seeing the Statue of Liberty for the first time.
Brownstones and African restaurants and black culture in Brooklyn.
Canal street.
Museums and art spaces in graffiti covered building in Long Island City.
Art. Art. Maybe a little bit more art.
Souveniers for my kids.
Showing Pedro around my city. Oh my god I can't wait.
Thursday, December 11, 2014
"Go back"
6:30 am. He comes to the side of the bed with the little yellow sauce pan I usually make his oatmeal in and hands it to me saying "oatmeal".
His "NOOO!" Is getting louder and stronger.
Sunday, November 9, 2014
A is for Awesome and Aggravating
Monday, September 29, 2014
May I present Liam
Tuesday, September 16, 2014
Problem solving
Thursday, September 11, 2014
While Lupe does gymnastics
He is curious and he likes other kids. Here he is hanging out with the big kids on another day. He will usually go up to someone and touch their shoulder to say hi.
Liam practicing his moving across syllables worksheet. He is now learning to say donut and cocoa before he even knows what those sweets are. He can also say mommy and daddy although he calls us mama and papa so I'm actually not sure if he knows what mommy and daddy is
Tuesday, September 2, 2014
Language
Thursday, July 24, 2014
Lazy summer
Monday, May 19, 2014
Dear IEP team
Normal auditory sequential development occurs at the rate of one bit per year of development. Thus a one-year-old child can process one piece, a two-year-old two pieces and so on. Normal auditory sequential processing for a child of seven years or older is considered to be seven plus or minus two digits. Our perception is that anyone over the age of seven with a digit span of less than seven has a deficiency in auditory sequential processing. Auditory sequential processing determines the ability to process language, to think conceptually, and to express oneself in words."
Our goals for Liam are to keep him active in rich and stimulating environments full of opportunities to explore sometimes freely and sometimes with guidance. We want him to have only the best role models around him, modeling language and behavior. We want to work with educators who see his absolutely unlimited potential and are open to learning about the home program we do with him. We want creative ideas for fun fine motor activities, creative ideas for working on auditory processing. We want to take dance, gymnastics, swim and music classes. We want to be involved in his education and possible preschool experience.























































